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  • Putting out there a general question (though I know AllergySuperHeros has some direct experience here that's already been helpful, I'd love for everyone's input!):

    We are considering (again) a baked egg challenge. The idea alone is causing a lot of anxiety in my stable, otherwise healthy allergic girl. I'm not very convincing in my reasons that she should try it, either. The wall we come up against is that, because of her worsening dairy and peanut allergies, she wouldn't be able to go out...
    Putting out there a general question (though I know AllergySuperHeros has some direct experience here that's already been helpful, I'd love for everyone's input!):

    We are considering (again) a baked egg challenge. The idea alone is causing a lot of anxiety in my stable, otherwise healthy allergic girl. I'm not very convincing in my reasons that she should try it, either. The wall we come up against is that, because of her worsening dairy and peanut allergies, she wouldn't be able to go out in the world and safely eat most things made with eggs anyway. She's not currently anaphylactic to eggs, either, which was a great hurdle for us to overcome. So, how would passing a baked egg challenge improve our quality of life, at least in the short term (still holding out hope that baked milk could be in her future in the long term)?

    Anyone out there with a dairy and nut allergy but not egg allergy who has some great recipes, or places to eat, or foods to try in this category? Even just one or two new options would possibly bring enough excitement to outweigh that anxiety, I think.
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  • Every parent has a story of playdates gone awry or awkward family party moments. Food allergy parents are no exception! I've been mulling the most grown-up way to approach responsible adults who want to help care for my food-allergic child, the outsized importance of food for social interactions, and the often-overlooked emotional challenges for kids who live with food allergies. Meanwhile, I'm taking a moment to remember that food worries are not the center of everyone's life. If I've made... Every parent has a story of playdates gone awry or awkward family party moments. Food allergy parents are no exception! I've been mulling the most grown-up way to approach responsible adults who want to help care for my food-allergic child, the outsized importance of food for social interactions, and the often-overlooked emotional challenges for kids who live with food allergies. Meanwhile, I'm taking a moment to remember that food worries are not the center of everyone's life. If I've made the education effort and it just isn't going anywhere, it's up to me to sigh, protect my kid, and move on instead of getting angry. More
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  •   Cheryl commented on this post about 1 week ago
    I'm working on some strawberry recipes today with my take from picking yesterday (two huge flats!). Meanwhile, I've been using magazine recipes that contain minimal egg and winging the replacement to see what happens. The best two: cinnamon zucchini bread and chocolate cookie cake. Let me know if you give them a try!
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  •   Cheryl commented on this post about 1 week ago
    IgE results came back for J on Friday. She's about to turn 10yo, and the allergist hoped for some improvement in egg, milk, and pecan markers that could guide skin testing and potentially lead to food challenges. We threw in the peanut bloodwork, apparently just to check it again. What we ended up with instead of improvements were higher numbers almost across the board (steady for egg, but still at the "very high" level).

    It's not a shock, really, because she's still reacting to foods, but...
    IgE results came back for J on Friday. She's about to turn 10yo, and the allergist hoped for some improvement in egg, milk, and pecan markers that could guide skin testing and potentially lead to food challenges. We threw in the peanut bloodwork, apparently just to check it again. What we ended up with instead of improvements were higher numbers almost across the board (steady for egg, but still at the "very high" level).

    It's not a shock, really, because she's still reacting to foods, but it was a sad confirmation anyway. Especially when the pediatrician who called with the news said she'd never seen numbers so high, and what are we able to eat?! We've spent almost a decade re-learning how to eat, and I'm proud of that...and I know that she isn't our pediatrician (part of a group practice) and meant well, but it was a challenge to hear that from a medical professional just the same. And it was a reminder that, as wonderful as doctors are at the investigative/diagnostic part, they really have little to offer sometimes for practical living advice.

    I know that there is contention between parent groups with anecdotes and health professional groups with hard science, but the truth is that both are absolutely essential to figuring out how to live #freefrom so many ingredients. Practical and emotional support is what keeps us all going after the diagnosis and the safety education start us on this path.
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    • CEglutenfreefoodie
      That was us last year...hoping that her 10yr test would should some lower numbers but saw some numbers go up higher. We roll with the punches and are That was us last year...hoping that her 10yr test would should some lower numbers but saw some numbers go up higher. We roll with the punches and are thankful of so many (both parents and health groups) that are there to support us. Our 11yr blood work is around the corner...wish us luck   More ...
    • nvanhoey
      Luck, @CEglutenfreefoodie ! I'm actually glad that the test results were pretty unequivocal. Clarity is never a given in health issues! Now we keep goLuck, @CEglutenfreefoodie ! I'm actually glad that the test results were pretty unequivocal. Clarity is never a given in health issues! Now we keep going as we already know how, at least for a few more years (we test every 3 years). We'll be thinking of your family this spring!   More ...
    • Allergy Superheroes
      At least you already have your routine down so it's nothing new. Just keep doing what you do best - being a super mom and helping your super kid! And At least you already have your routine down so it's nothing new. Just keep doing what you do best - being a super mom and helping your super kid! And you never know, some could still be outgrown. Good luck to you and CEglutenfreefoodie for more positive results next time!  More ...
    • Cheryl
      I'm so sorry to hear this, nvanhoey & CEglutenfreefoodie. As that old Irish proverb suggests, it takes grace to accept the things we cannot change...oI'm so sorry to hear this, nvanhoey &aCEglutenfreefoodieodie. As that old Irish proverb suggests, it takes grace to accept the things we cannot change...or control... and this is certainly one of them. I know what you mean about how hard it can be to hear a physician's apparent shock at the lives that we, and our children, lead. It points out to us the banner that we are carrying, as best we can, day in and day out. Banners we didn't choose - and that our kids most certainly didn't choose either. And yes, over time perseverance becomes our super power - but I've already called "dibs" on simpler biology next time around!   More ...
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  • nvanhoey
    nvanhoey updated an article
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  •   Cheryl liked this post about 4 weeks ago
    Turns out I didn't need to come up with a lot of ideas for my preteens---they made their own Easter crafts! From left: bath bombs from Blommi.com, wooden painted eggs from years past, more bath salt work, homemade no-bake coconut molds, sticky bun breakfast, and a table centerpiece from recycled materials. #joyful #freefrom holiday moments all around
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  • nvanhoey
    nvanhoey updated a blog post
    Food Allergy Frameworks
    Do you consider your food allergy blog, recipes, and more a hobby? A business? A diary for your way of life? All of the above? Regardless......
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  • nvanhoey
    nvanhoey is now friends with SoDeliciousDairyFree
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  • nvanhoey
    nvanhoey updated an article
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