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  •   BobsRedMill commented on this post about 2 days ago
    Spent the last 2 weeks re-learning some favorite meals and snacks in #wheatfree versions. Bob's Red Mill flours have been lifesavers, moreso than when we were just using products like the chickpea flour for fun and flavor variety. Definitely a worthwhile featured brand profile for any ##customeater !
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  • nvanhoey
    nvanhoey updated an article
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  • nvanhoey
    nvanhoey is now friends with BobsRedMill
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  • Here we go again. I'm adding no yeast, poultry, or wheat to my #customeater diet this summer. At least this time, I have some experience, some humor, and some resilient kids with food allergies to help me along!

    Nailing down actual recipes is going to take some time, but I've started a gallery of what's working so far on the blog this week. A new resource collection and recipe ideas, coming soon, I hope.
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  • Ah, back to living in the world again. I retreated to learn (again) how to make it through meals, snacks, and treats after learning about a new food allergy.

    It's good to be sliding out of panic mode and into food happiness again, and faster than when we remade our diets the first time around! And I'm so grateful to have a resource like this one, too, to turn to and find just what I need now, more easily than with random Google or media options. So, here we go: heading into wheat-free (not...
    Ah, back to living in the world again. I retreated to learn (again) how to make it through meals, snacks, and treats after learning about a new food allergy.

    It's good to be sliding out of panic mode and into food happiness again, and faster than when we remade our diets the first time around! And I'm so grateful to have a resource like this one, too, to turn to and find just what I need now, more easily than with random Google or media options. So, here we go: heading into wheat-free (not gluten-free) and more, but it's going to be okay! Back to blogging and baking....
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  •   Cheryl commented on this post about 1 month ago
    Sending out a request to all of you EoE members today: How do you simply explain to others why you can't eat something (when the reason isn't food allergy anaphylaxis)? I'm officially off of all chicken (including broth) to see if my EoE improves. Which is fine. But people are having a hard time understanding that something I eat now could make my esophagus smaller for food to get stuck in it later. Truthfully, I'm having a hard time with that concept, too.
    • Cheryl
      So, we're not an EoE family, but we face the same challenge with explaining the incredibly limitING extent of my son's mast cell reactions, or for thSo, we're not an EoE family, but we face the same challenge with explaining the incredibly limitING extent of my son's mast cell reactions, or for that matter any of my own myriad food intolerances. In my son's case, he reacts to anything but the 15 or so foods to which he's already de-sensitized. Before diagnosis, he didn't grow a lick and his stomach lining came out in his diaper. In other words, not anaphylactic - but clearly not something to mess around with. Today, now that his stomach lining is all healed up, if he tries something new he'll likely have some minor stomach upset and skin reactions - but the neurochemicals released in all those mast cells triggering can make for an emotionally debilitating mess that then evolves into temporary neurological symptoms - like not being able to see, or write in a straight line. So again, not ana, but still not a functional state. And, reactions can be immediate or take time to build, making it impossible to trial more than 1 thing at a time (patiently!), and can also be triggered by things totally outside of our control, like having to take antibiotics, seasonal allergies or stress.
      Thus, we explain his situation as, "death by 1,000 cuts, so you prevent all the cuts you can to make room to absorb the ones you can't." And, I've found with all my own food intolerances, people take their cues from me. So if I make clear it's an absolute "no, though in my case it's not anaphylactic" then most people seem to respect it. I know EoE presents such unique challenges - I hope something in our approach can be helpful!
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    • nvanhoey
      Thanks, Cheryl! You have an awful lot on your shoulders. This is helpful. I find myself getting wordy about it or just shutting down (not a good long-Thanks, Cheryl! You have an awful lot on your shoulders. This is helpful. I find myself getting wordy about it or just shutting down (not a good long-term solution). Baby steps, like with everything, I suppose. Have a great weekend!
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    • Cheryl
      Yes - baby steps. When I first lost all my foods, it was for the little baby I was nursing - and I found it pretty easy to ask other grownups to help Yes - baby steps. When I first lost all my foods, it was for the little baby I was nursing - and I found it pretty easy to ask other grownups to help accommodate "to help my baby." But when I weaned him and discovered that long-standing symptoms came back again when I tried to reintroduce foods back into my own diet, well I found it very difficult to ask for those exact same accommodations when it was for my own body's needs. I decided that said a lot more about me than it did about the culture around me, and that I ought to work on that!   More ...
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  • nvanhoey
    nvanhoey updated a blog post
    Sometimes it seems like the allergies in my household just keep piling on us. In the past few years, my youngest has not outgrown any allergies,......
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  •   Cheryl commented on this post about 1 month ago
    On the Pantry blog today, I'm sharing the card my daughter and I formulated (based on advice from our allergist) as a reminder for her about......
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